Who Benefits From Inadequate Systems of Care?

Who Benefits From Inadequate Systems of Care?

Families that choose in-home care for their loved ones take the brunt of inadequate systems of care. Some implications for families: One or both adults in the home often have to forego their careers to care for the family member, forcing them to live in poverty....
In-Home Caregiving

In-Home Caregiving

To protect our loved ones, hundreds of thousands of families who relied on in-home care went without caregiving or nursing throughout the pandemic. Family members picked up the slack. In our home alone, the government saved on three part-time caregiver paychecks for...
Quality Caregiving

Quality Caregiving

When families are up in arms about caring for our loved ones, it’s not because we don’t want to do it. It’s because we don’t want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with...
Fighting for Alternative Options in Caregiving

Fighting for Alternative Options in Caregiving

When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...
Flexibility in Care Policy Can Be the Norm

Flexibility in Care Policy Can Be the Norm

Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...