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We live in a capitalist culture that values work over family, money over wellness, and busyness over rest.
Schools are obsessed with children meeting standards while hospitals and clinics are busy ping-ponging patients from one specialist to the next—neither gathering data on the whole person.
We are cogs in systems that measure the worth of human beings based on output. We go, go, go, and aren’t granted time to reflect on where the heck we are actually going.
We only fit the script if we show up consistently or if we fall within a certain percentage on evaluations.
Nobody cares if we show up burnt out or if our ideas cannot be measured on a scale.
I couldn’t allow my son (whom I understood immediately was not going to fit neatly into a square peg) to become a product of the systems in which I was raised.
Through home education, we avoid systemic barriers: overcrowding, waitlists, reduced resources, and inadequate facilities. We now request medical appointments at a time most convenient for us, and we rest when we’re ill. Our home is accessible, and I have direct access to the caregivers who work with my son.
The flow between family life, education, work, and medical care has become holistic for us— not disjointed parts of many systems.
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Continue reading my essays, activities, and case studies for supporting the education of disabled/chronically ill and neurodivergent children.
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