Why This Glossary Matters For far too long, caregiving language has been dictated by medical, educational, and social systems that fail to reflect the lived experiences of caregivers and, most importantly, their loved ones. Words like "burden" and "non-compliant"...
When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...
When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...
Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...
Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...
Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...