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Caregiver Resource: Simplifying Record-Keeping for Families

Caregiver Resource: Simplifying Record-Keeping for Families

Caregiver Resource Guide: Organize Care and Support with Ease   What is a caregiver resource? A caregiver resource is a collection of essential tools, templates, and information designed to help family caregivers organize, manage, and track all aspects of care for...

Who Benefits From Inadequate Systems of Care?

Who Benefits From Inadequate Systems of Care?

Families that choose in-home care for their loved ones take the brunt of inadequate systems of care. Some implications for families One or both adults in the home often have to forego their careers to care for the family member, forcing them to live in poverty....

In-Home Caregiving

In-Home Caregiving

To protect our loved ones, hundreds of thousands of families who relied on in-home care went without caregiving or nursing throughout the pandemic. Family members picked up the slack. In our home alone, the government saved on three part-time caregiver paychecks for...

Quality Caregiving

Quality Caregiving

When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...

Educational Series

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More Essays, Activities, and Case Studies

Fighting for Alternative Options in Caregiving

Fighting for Alternative Options in Caregiving

When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...

Flexibility in Care Policy Can Be the Norm

Flexibility in Care Policy Can Be the Norm

Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...

What if We Did Caregiving Differently?

What if We Did Caregiving Differently?

What if we did caregiving differently?   What if systems of care weren't a one-size-fits-all solution? What if the end-user had a say? What if we trusted the end-user's personal experience? What if we didn't impose? What if support were preventative rather than...

What if We Can Change What Care Looks Like?

What if We Can Change What Care Looks Like?

Working together for quality care is key Separating specialists from the learners or clients as well as from one another only creates miscommunication, disconnection, and unnecessary wait times in an already very bureaucratic system. We need to work together for the...

Fighting for Alternative Options in Caregiving

Fighting for Alternative Options in Caregiving

When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...

Flexibility in Care Policy Can Be the Norm

Flexibility in Care Policy Can Be the Norm

Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...

What if We Did Caregiving Differently?

What if We Did Caregiving Differently?

What if we did caregiving differently?   What if systems of care weren't a one-size-fits-all solution? What if the end-user had a say? What if we trusted the end-user's personal experience? What if we didn't impose? What if support were preventative rather than...

What if We Can Change What Care Looks Like?

What if We Can Change What Care Looks Like?

Working together for quality care is key Separating specialists from the learners or clients as well as from one another only creates miscommunication, disconnection, and unnecessary wait times in an already very bureaucratic system. We need to work together for the...