Why This Glossary Matters For far too long, caregiving language has been dictated by medical, educational, and social systems that fail to reflect the lived experiences of caregivers and, most importantly, their loved ones. Words like "burden" and "non-compliant"...
When it comes to caring for a neurodivergent or disabled child, there’s no roadmap, guidebook, or manual to prepare you for what’s ahead. When my son was first diagnosed, I remember feeling as though I’d stepped into an entirely different world. While I had my...
Caregiver Resource Guide: Organize Care and Support with Ease What is a caregiver resource? A caregiver resource is a collection of essential tools, templates, and information designed to help family caregivers organize, manage, and track all aspects of care for...
Families that choose in-home care for their loved ones take the brunt of inadequate systems of care. Some implications for families One or both adults in the home often have to forego their careers to care for the family member, forcing them to live in poverty....
To protect our loved ones, hundreds of thousands of families who relied on in-home care went without caregiving or nursing throughout the pandemic. Family members picked up the slack. In our home alone, the government saved on three part-time caregiver paychecks for...
When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...
When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...
Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...
To protect our loved ones, hundreds of thousands of families who relied on in-home care went without caregiving or nursing throughout the pandemic. Family members picked up the slack. In our home alone, the government saved on three part-time caregiver paychecks for...
When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...
When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...
Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...