When it comes to caring for a neurodivergent or disabled child, there’s no roadmap, guidebook, or manual to prepare you for what’s ahead. When my son was first diagnosed, I remember feeling as though I’d stepped into an entirely different world. While I had my...
To protect our loved ones, hundreds of thousands of families who relied on in-home care went without caregiving or nursing throughout the pandemic. Family members picked up the slack. In our home alone, the government saved on three part-time caregiver paychecks for...
When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...
When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...
What if we did caregiving differently? What if systems of care weren't a one-size-fits-all solution? What if the end-user had a say? What if we trusted the end-user's personal experience? What if we didn't impose? What if support were preventative rather than...
Working together for quality care is key Separating specialists from the learners or clients as well as from one another only creates miscommunication, disconnection, and unnecessary wait times in an already very bureaucratic system. We need to work together for the...
Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...
What if we did caregiving differently? What if systems of care weren't a one-size-fits-all solution? What if the end-user had a say? What if we trusted the end-user's personal experience? What if we didn't impose? What if support were preventative rather than...
Working together for quality care is key Separating specialists from the learners or clients as well as from one another only creates miscommunication, disconnection, and unnecessary wait times in an already very bureaucratic system. We need to work together for the...
Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...