Caregiving

When families are up in arms about caring for our loved ones, it's not because we don't want to do it. It's because we don't want to do it in this way. Parents/guardians/caregivers hardly speak up about our reality because we are met with options that set our children...

When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...

Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...