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Who Benefits From Inadequate Systems of Care?

Who Benefits From Inadequate Systems of Care?

Families that choose in-home care for their loved ones take the brunt of inadequate systems of care. Some implications for families One or both adults in the home often have to forego their careers to care for the family member, forcing them to live in poverty....

Fighting for Alternative Options in Caregiving

Fighting for Alternative Options in Caregiving

When parents of non-disabled children say they are tired, they are met with sympathy and compassion. Grandparents and friends rally around with support. When parents of disabled children say they are tired, the conversation changes to respite centers and specialized...

Flexibility in Care Policy Can Be the Norm

Flexibility in Care Policy Can Be the Norm

Breaking care policy is not an exception, but an accommodation A sales associate for elimination supplies scolded me for not being better organized. She was upset I was calling last minute to reorder supplies we required the same week. I should write it in my...

What if We Did Caregiving Differently?

What if We Did Caregiving Differently?

What if we did caregiving differently?   What if systems of care weren't a one-size-fits-all solution? What if the end-user had a say? What if we trusted the end-user's personal experience? What if we didn't impose? What if support were preventative rather than...

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More Essays, Activities, and Case Studies

Quality Care is a Human Right

Quality Care is a Human Right

Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...

Quality Care is a Human Right

Quality Care is a Human Right

Two decades into the 21st century and most decisions made about neurodivergent and chronically ill/disabled individuals are made by non-disabled people many levels removed from the lives they directly impact. Social service is set up to assist individuals and their...